An open source project enabling electronic Patient-reported Outcomes (ePRO) in day-to-day clincal practice using the MOSAIQ® oncology information system
Maintained by Thilo
This public demonstrator aims to provide an easy introduction into the functionality and opportunities of the PROsaiq system.
The following diagram provides an overview of the PROsaiq components used in this demo:
The components marked with the red star can be accessed directly as part of this demonstrator. As there is no online MOSAIQ system that could have been used for this demonstrator (grey), a simple web-based user interface was built to display the HL7 message generated from the data received by the ‘HL7 Converter’ component (yellow).
NOTE
In the full PROsaiq prototype the HL7 Converter and Web Server run in the background (i.e. no direct user interaction) providing MOSAIQ with HL7 files for automatic importation.
PROsaiq can be used on multiple devices such as tablet computers, smart phones, or personal computers provided they support a modern browser with adequate HTML5 support. Note that if you are having issues using this demonstrator, please try accessing from a recent Chrome, Firefox or Safari browser.
This demonstrator has three examples:
ePRO Instrument | Comment |
---|---|
Patient Reported Functional Status (PRFS) | The Patient Reported Functional Status (PRFS) is a ECOG status assessment expressed in lay language. It has bee developed and validated by Cancer Care Ontario (for details see here). |
Symptom Assessment Scale (SAS) | The Symptom Assessment Scale (SAS) describes the patient’s level of distress relating to the seven most common symptoms by palliative patients. The SAS was developed in Australia (for details see here). |
'State your height' Survey | A survey that shows some of PROsaiq’s advanced features such as validation or branching. It was used in PROsaiq’s initial demonstration (see coming soon). |
The PROsaiq system generates a customised HL7 message from the ePRO data collected. In routine use of the PROsaiq system this message is automatically imported into MOSAIQ after submission of ePRO data (via browser or app) without any further user input (i.e. the HL7 Converter web interface is only used for demonstration). This therefore provides the clinicians a MOSIAQ-integrated longitudinal view of the ePRO data, without introducing time consuming steps such as switching to a different system (for an example see screenshot of ‘State your height’ data in MOSIAQ).
The following steps are exclusive to the demonstrator (as explained in the preceding paragraph):
CAVEAT
For this demo the HL7 converter has been hosted as a web app on a freely available Heroku server in the US. As a free-of-charge service the performance is limited. When the app had been idle for more than 30 minutes, it can take up to 60 seconds until it can be reached (please refresh after 1-2 minutes). The reason for this delay is that the server is dynamically powered off/on in order to conserve energy and performance.
NOTE: This part of the demonstrator can be skipped to save time.
PROsaiq provides an alternative data collection method for smart devices running the Android operating system. Browser and app-based data collection each have their strengths (see comparison matrix).
This part contains the same forms as part I. However, it requires more preparation such as app download and configuration steps. We have deliberately put this alternative data collection method last in this demonstrator to give the option of skipping during the initial use. The following instructions provide step-by-step guidance for the interested user: